Every day is a gift, that is why it is called the present.
When this process first started, my brother Erik, ever so lovingly put into words "this is the new normal". How very true this is.
Normal is the cancer book on my bed stand. Normal is the bald 34 lb child asleep in bed next to her sisters. Normal is the vomit bowls placed in strategic places around the house. Normal is Dana Farber. Normal is the medicine cabinet full of medicine. Normal is knowing this will always be part of her story.
And in this "new normal" I have come to realize something. Normal is relative!
We can wish for something else for our 4 year old, but we can't wallow in our sadness. This is her journey. Lord willing if she has an opportunity to look back we will not have taught her to look with heartache. She must know that there is no pity here. This is her life. We will embrace it no matter what form it has taken! No looking back and saying "we are so sorry you missed out...." because in our eyes she hasn't.
Today is the Boston Marathon. Doug's Uncle Pete is running it for the 29th time and this time he is running it for Sephine. He has been inspired by her journey. Granted she is 4 and he is 70. It goes to show that the length of a life lived, even 4 years, can still motivate those to keep running onward. It is encouragement to continually realize that every single day is a gift!